I do not wish to bore you, my readers, with stories of my own childhood. However I just want to tell you this story and encourage you to read my latest blog.
When I was 14 I had my own rather large group of friends. In my school year I spoke to almost everyone, mostly all of my classmates. When I was 14 I had responsibilities, not just in my home but school and towards my classmates. My mum and dad could have a lie in at the weekend, they could depend on me to get ready for school, put a washing, iron my own clothes and keep my bedroom “tidy”. I was permitted to go out with friends and even have sleepovers.
Now I’m a mum of children with disabilities, it is a completely different World…..
Jack is fourteen. He has been diagnosed with Autism, ADHD, GDD and severe behavioural issues and although he has the body of a young man, mentally he is nowhere near 14 years old. Yes that makes me sad to no end. Daryl is eleven years old. He has Epilepsy, GDD and also severe behavioural issues.
I cannot leave them unsupervised. I would love for them to have the same responsibilities as I did but it’s just not appropriate or feasible in any circumstances. When given the opportunity my two oldest boys will destroy anything they are given unsupervised access too. I spend a fortune on bathroom products because my boys ruin everything due to their sensory needs. In the past three years Jack and Daryl have broken two front windows, a glass panel in my front door, six televisions, six tablets, PlayStation Computers, sky boxes and also furniture…
Since last August Daryl has completely changed and I am struggling. In fact myself and my family are. Lately it has been truly difficult and testing times. Other than breaking things in the house, he is also targeting his toddler wee brother. Kyle is only two years old and just wants to be Daryl’s friend. Kyle adores him and follows him around.
I have begun to take Kyle with me if I have to leave them together. If I don’t there is a massive probability that Kyle will be hurt. It is truly awful. I follow them everywhere just to make sure they aren’t eating anything they shouldn’t or breaking household products or ruining things.
It is a truly stressful living situation and my boys need supervision at all times. Hopefully in a few weeks it will ease slightly as we will hopefully be moving house and all of my children will have their own space.