I have had many, many conversations with people about my boys and their disabilities. Jack is 13, he has Autism, ADHD and GDD. He can be extremely aggressive. Daryl has special needs too. Daryl is 10, he has Epilepsy, GDD, speech and language difficulties and he too is aggressive.
The conversations I have had have been both formal and informal. Friends and family are curious, Professionals have forms to fill out and teachers are with my children Monday to Friday except holidays.This has happened continuously and the look that they have given me is always the same. Head cocked over to the left or right side and wide eyed. “Awe I’m so sorry” or “I don’t know how you do it”. Sometimes they don’t say anything, quickly change the subject but I know what they are thinking.
I don’t want you to feel sorry for us. My children are happy and healthy and that’s all that matters to me. They aren’t having an unhappy childhood. They are having a different one… Nothing less.
Please don’t feel sorry for us or my children. In his own way Jack is extremely happy in his own little world. This includes playing offices and watching wrestling. He loves his tablet. He’ll watch the same video over and over.. That makes him happy. Jack is an excellent big brother to Kyle. He’ll play with the toys with him for a wee while and he always knows how to make him laugh and that is special.
Ive finally taught him to keep the volume down low so the wrestling audience isn’t the only sound in the room. I can tell when he’s fed up and wants peace and quiet from the craziness of our family because he gets up and briskly goes to his room. It’s then I know he’s just had enough of me, Andy and his brothers. This is fine, everybody needs alone time.
Daryl has his own interests and activities such as his tablet,wrestling, building blocks, cars and his top activity is music and dancing. He’ll get onto any dancefloor at a party and does his best to breakdance, dance and jump around like the other children. He enjoys interaction with anyone and would sit for hours showing me or the closest person what is on his tablet.
“How do I do it? My children are extremely hard work and home situation can be stressful. I am lucky enough to have an amazing husband who has taken on two step children and he loves them and treats them the same as he does Kyle. Andy works full time so I am always here for my children.
I do it because I’m their mum, I do it because they need me. I would do anything to support my boys. Most importantly, if I didn’t do it, who would?